Tongue Tie Self-Assessment
Evaluation:
Parents should put the babyâs head in your lap with legs facing away sitting bumped up against a chair with a pillow on the other chair to support the legs (two people is ideal)
Proper positioning is important. This is the most common error made by medical professionals looking for tongue-tie or lip-tie. The provider and the parent should face each other, knees touching. The baby is laid on the lap of this makeshift table, baby's head towards the examiner. You cannot adequately evaluate a baby's mouth when they are sitting in a parent's lap in an upright position. A pillow on a chair can substitute for the second parent when only one parent is available for the evaluation.
The goal of the examination is to try and determine the degree of tension of the frenulum of the lip and tongue on the surrounding tissue.
The assessment is accomplished by pulling on the upper lip and lifting up the tongue with two fingers and observing how the baby reacts. In the event that it appears to be awkward to them, they regularly wriggle. In the event that the frenulum is tight, it will frequently turn white or blanch. Take a look at where the frenulum is connecting to the gum line or tongue.
This technique is also the preferred technique for obtaining pictures of the lip or tongue.Â
>>>This video illustrates the examining procedure (credit is not mine).
Tongue ties (ankyloglossia) are caused by an unusually tight band of tissue anchoring the tongue to the floor of the mouth. This restricts the tongueâs normal function, which can cause breastfeeding issues in infants, as well as speech, dental, and airway issues later on.
Tongue ties are more common than most people thinkâin fact, theyâre the most common problem I see in my postpartum/at home lactation visits. Doctors and lactation consultants have known about anterior tongue ties for years (the kind of tie that extends further toward the tip of the tongue), but are often less educated about posterior tiesâthe kind closer to the base of the tongue. The resulting underdiagnosis of posterior ties means many mothers and babies continue to suffer and experience a frustrating breastfeeding relationship.
Because anterior tongue ties are more obvious, almost no one will question an anterior tie. A posterior tie, however, can sometimes be almost invisible.
Iâve had clients come to me who have already been told definitively by their pediatrician or another lactation consultant that their child doesnât have a tongue tie, only to discover that a very tight posterior tie is causing their breastfeeding issues.
Even if a baby has a normal-appearing tongue, with the frenulum in the expected placeâor even no frenulum at allâif they or the mother are experiencing the below symptoms, they can still have a posterior tie.
Here are the things to look for. Please remember that a baby with a tongue tie may only have one of these signs, but they may also have many of these signs.
1. Breastfeeding hurts.
Breastfeeding is not supposed to hurt. If it does, then something is wrong. Sometimes itâs simply a latch issueâbut babies that have consistent difficulty latching correctly are often experiencing this because of a tongue- and/or lip tie. Tongue ties and lip ties often go hand in hand. If your baby cannot flange their upper lip over the breast, this is a sign of a lip tieâand an indicator that a tongue tie is likely also present.
2. Cracked, bleeding nipples.
Often, when a baby has a tongue tie, the tongue is unable to draw the breast tissue into the babyâs soft palate, causing nipple damage from rubbing on the hard palate. Good positioning and using the âbreast sandwichâ technique can help with this some of the time.
3. Misshapen nipples.
Often, after a feed, the motherâs nipples will look like the tip of a lipstick bullet, or have a crease on the end.
4. Frustration at the breast.
A tongue-tied baby often gets frustrated at the breast and may break the latch frequently, because they are unable to transfer milk efficiently.
5. Clicking and/or gulping sounds while nursing.
A tongue-tied baby is often unable to form a proper seal around the breast, which results in clicking sounds as suction breaks repeatedly. The gulping is from the tongueâs inability to swallow appropriately as the tongue is tethered. Both of these function issues will often cause the babe to take on a lot of air and be gassy and fussy.
6. Too much suction.
When the tongue is dysfunctional as a result of a tongue tie, a baby will often attempt to compensate for this by sucking harder. This excess vacuum can be exhausting for the baby, and uncomfortable for the mother. A normal âsuckâ is more like a wave motion of the tongue than a suck.
7. A sensitive gag reflex.
When the tongue is tethered too tightly to the floor of the mouth, the babyâs palate doesnât receive a normal amount of stimulation, which can result in an overly sensitive gag reflex.
8. Uncoordinated sucking motion.
When you put your finger in a tongue-tied babyâs mouth, often the sucking motion will be uncoordinated and uneven, and they may break suction often. This can be frustrating for the baby, resulting in fussiness at the breast, and it can also be very exhausting, tiring the baby out before getting a full feed.
9. Poor weight gain.
If mom doesnât have a strong milk letdown, a tongue-tied baby can struggle to gain weight. If mom has a good letdown, sometimes a baby with a tongue-tie can still thrive and gain weight wellâbut may experience other non-weight-related symptoms (more info on that below.
10. Digestive problems.
Because of the difficulty a tongue-tied baby has forming and maintaining a proper seal around the breast (see #5 and #8), they tend to swallow a lot of extra air, which can result in gassiness, excessive spit-up, and reflux-like symptoms.
11. Irritability or colic.
This is often related to #10, or caused by baby simply being hungry because they canât get a full feed. Even in the absence of obvious gassiness, stomach discomfort from excess air intake can manifest itself as colic or general irritability.
12. Recessed chin or dimples.
An unrevised tongue tie can cause a recessed chin, though some babies will have this without a tongue tie simply due to genetics.
13. High, narrow palate.
A fully functional tongue rests against the roof of the mouth when the mouth is closed, which helps the palate develop the proper shape. A tongue tie can prevent the tongue from resting against the palate, which can cause it to develop a high and/or narrow shape.
To breastfeed efficiently, baby needs to be able to compress the breast tissue against the roof of the mouth, and a high palate can interfere with this.
14. Reoccurring Clogged Ducts or Mastitis.
A dysfunctional tongue will have the overall result of preventing the baby from transferring milk well, and properly draining the breast. This can result in mastitis, as clogged ducts in the breast can lead to painful and potentially dangerous infections.
If any of the above symptomsâeven just oneâsound familiar to you, please see an IBCLC (Internationally Board Certified Lactation Consultant), or a pediatrician who is familiar with posterior tongue ties. Not all pediatricians or lactation consultants will be familiar enough with posterior ties to recognize or diagnose them.
All anterior ties also have a posterior component, so itâs crucial that you find a provider that knows how to laser or clip the tie completely. If the provider doesnât revise the tongue far enough back, it will be an incomplete revision which often will not improve symptoms.
Why We Revise Tongue-Ties
Sometimes mothers and medical practitioners are hesitant to revise a tongue tie because of the discomfort it may cause the baby, or because breastfeeding is going well enough. Here are some important things to consider if youâre on the fence:
Milk production, at the very beginning, is hormonally-driven. Hormones present in your system stimulate the production of milk, regardless of whether or not baby is nursing, and these hormones continue to affect production to some extent for the next several weeks. Around 10-16 weeks, production begins to work almost solely on supply and demand. This means that if the baby is not transferring milk efficiently, milk supply will almost certainly begin to dip. It takes an incredible amount of work to maintain supply when a baby is inefficient at draining the breast at each feeding.
Even if a tongue-tied baby has been breastfeeding well and gaining weight during the first several weeksâusually because Mom has an exceptionally good letdown reflexâsupply will often drop at the 10-16 week mark once hormones arenât playing as big a role. Coincidentally, this is around the time a lot of mothers go back to work or start menstruating again, and so often the real issue (the tongue tie) is masked by other factors.
Other complications that can arise from an unrevised tongue tie (even if breastfeeding is going well):
- Difficulty swallowing solid foods when they are introduced to the diet. Gagging, choking, and tongue-thrusting motions are common with tongue-tied babies attempting to eat solids.
- Dental issues are very common with tongue-tied children, though these usually arenât obvious until much later. A tongue or lip tie can cause the spreading of the upper teeth and prevent the jaw from developing correctly, resulting in the need for orthodontic work later in life. The underdeveloped jaw often will be weak/recessed, and not provide enough room for the adult teeth, causing crowding and recurrent decay issues.
- Speech problems are common among children with unrevised tongue ties, as their tongues are unable to achieve the full range of motion necessary to create the proper sounds.
- Back pain. Believe it or not, a tightly tethered tongue can cause tightness in the muscles of the jaw, face, and neck, which creates a kind of domino effect throughout the body (remember, everything is connected), resulting in poor posture and lifelong back pain.
- Sleep problems. The underdevelopment of the jaw can compromise the airway, resulting in sleep apnea and other disorders that can affect your childâs sleep throughout their life.
There are many reasons to address a babyâs tongue tie, even if breastfeeding is going well. If youâre struggling to breastfeed, if baby is having a hard time gaining weight, or if youâre experiencing any of the above symptoms, please see a specialist that can properly diagnose both an anterior and a posterior tongue tie. The results of a proper tongue-tie revision can be truly life-changing.
To find a qualified provider near you, please visit your stateâs Facebook Tongue Tie group or even betterâŚa local mama Facebook group so that mamaâs in your area can dish the good and the bad before you book in with someone.
At this time I am currently able to accept many forms of insurance which would make your telehealth visit with me completely free once approved. To check your insurance just use the link here.
If you have been told that your baby doesnât have a tongue tie, but your gut is saying, âSomething just isnât rightâŚâ get reevaluated by another expert! Many many many pediatricians and IBCLCâs are not qualified to be evaluating for tongue/oral ties and therefore babies are left without revisions that will be beneficial to both them and you!
In the meantime, if you need to wait to be seen and revised, some families have found that bodywork including chiropractic, massage, and craniosacral therapy (CST) have helped release tension in the nursling and ease breastfeeding pain associated with tongue ties and lip ties.
Some families will opt to just receive bodywork and not have the tie released at all. This is a personal decision that only you can make with the help of your trusted provider.
Who can diagnose a tongue tie?Â
Tongue tie is typically diagnosed during a physical exam. Tongue ties are sometimes diagnosed during a babyâs routine newborn check, but itâs not always easy to spot. It may not become apparent until later when problems have arisen. Once a tongue tie is suspected, itâs important to find someone who is knowledgeable about both tongue ties and how they interact with breastfeeding. This may be a pediatrician, dentist, oral surgeon, or otolaryngologist (ENT). An IBCLC cannot diagnose a tongue tie, but they can evaluate and refer to another healthcare provider for a diagnosis.
How does a tongue-tie revision work?
Tongue ties are revised (corrected) surgically. Also called a frenotomy, the procedure is usually done by an otolaryngologist (ENT) or pediatric dentist but is also done by some pediatricians. The provider will usually do a physical evaluation of the tongue and mouth and may also do a functional evaluation to see how the baby nurses. The provider may also suggest seeing an IBCLC for a more thorough functional evaluation before or after the procedure to ensure that there are not other possible breastfeeding issues.
Here are a couple of videos of an actual laser tongue tie release:
Video 1
Video 2
At-Home Exercises Are Important!
Something that many providers forget to tell parents or donât elaborate on enough is the Post Frenectomy Exercises After Tongue-Tie and Lip-Tie Release. These are SUPER important so that the tissue does not re-adhere and cause issues in the future. Here is a great video to follow if your provider didnât go into much discussion about the importance of the exercises or show you how to do them.
Here is a second resource that is amazing.
Oral Exercises help a baby improve feeding skills!
The uterus is a tight place, and birth is a bumpy ride! All babies need some time and a bit of help, to âunwindâ post-birth - some more/some less. For babies with oral tension (possible ties), torticollis and other body tension/asymmetry, bodywork is especially important. For more info about ties and bodywork - which are very connected to the topic of oral exercises - please check those linked pages along with the information on this page!
Starting Oral Exercises - basic set of skills - tongue lateralizing (side to side motion), suck training, palate work (to desensitize a gag, for example), chewing for jaw strength, stretching for the cheeks, and more.
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Here are two great videos showing the basic set of Infant Oral Exercises:
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Infant Suck Training Exercises by LA Lactation
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Infant Oral Exercises by Lisa Lahey
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I recommend doing these exercises (or any portion of them) 3-5 times per day for a few minutes. Diaper changes or when the baby is on your lap are both great opportunities to do these. Keep your sessions short and sweet, and have fun with them - make up silly sounds and words to enjoy with your baby!
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Once the baby is suckling on your finger, start to do a âtug of warâ to strengthen the suction.
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Then challenge the babyâs ability to keep the suckling going even if the mouth is wider by tugging on the chin while the baby is sucking on your finger.
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Ultimately we want the baby to be able to keep their tongue fully extended, lifted up and cupped
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The Sleeping Tongue Posture Hold - excellent for promoting tongue strength, closed mouth breathing, and also can be used after a tongue tie release to do tongue stretches.
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And here are some more videos with oral exercises to use (many have overlapping ideas with the videos above)
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Enhancing oral exercises with toys and teethers - There are many that enhance oral exercises (this is just a small sample)
Bodywork for Breastfeeding Difficulties
Bodywork is an important component of your baby's care. Bodywork is the use of hands-on touch and physical therapy to allow a babyâs soft tissues to release tension and reorganize.Â
Bodywork is performed by a professional such as a skilled osteopath, a chiropractor (trained in craniosacral therapy and treating newborns), an occupational therapist, a physical therapist, or in some cases a highly skilled massage therapist with extensive training and experience in infants and craniosacral therapy.Â
The bodyworker administers this physical therapy in order to relieve tension in the babyâs body, which strengthens and lengthens the muscles â especially those associated with breathing and breastfeeding. Bodywork also helps support neurological integration, the process by which the baby learns to control and move their body. There can be issues with reduced neurological in Caesarean or mechanically assisted births, so bodywork can help address this issue by giving the baby the natural stimuli that they may have missed due to the birthing process.
All of the issues that bodyworkers fix can be a problem for tongue-tied babies â breathing and eating in particular. Bodywork can help babies to ameliorate the negative effects of tongue tie. Because facia is how we are connected from head to toe, and because the tension created in the mouth from the tongue tie creates tension elsewhere in the body, the help of a bodyworker can release the tension pre-surgery, making the surgery easier for the surgeon and baby. The less tension in the mouth, neck, and head after surgery means less tension on the wound and better healing overall. Bodywork is most useful when performed before and after frenectomy surgery.
Below are five different types of "bodywork" parents can do with their babies. These should be done in a playful, gentle way that creates a positive atmosphere.
Purpose: Helps organize suck patterns, improves range of motion of the tongue, decreases gag sensitivity.
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Purpose: Helps loosen tight muscles that restrict movement, integrates reflexes, and encourages equal use of left and right side of body (symmetry)
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Purpose: Helps strengthen core and neck muscles involved in efficient breastfeeding. Helps prevent torticollis and flat head syndrome. We recommend about 30 minutes a day for a one month old, 60 minutes a day for a two month old, and for older babies we recommend they be placed on the floor anytime they are not being held (no seats or swings). Try tummy time after every nap.
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Purpose: Helps relax baby and loosen tense muscles. Could be especially helpful for a baby who seems tense or high strung.
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Purpose: Helps release tension under the jaw and neck for increased mobility and reduced risk of tongue-tie reattachment.
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Purpose: Helps prevent reattachment after release of tongue and lip ties as well as improve infant's range of motion and coordination. Skip ahead to 2:37 in the video to see demonstrations. We recommended performing stretches 4 times per day post-frenotomy.
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Instagram pages to follow for oral exercises (and more!)
Click here to check your insurance to see if you qualify for 6 free (fully covered) virtual or in-person lactation visits with me! I am now able to accept most Cigna, BlueCross Blue Shield, Anthem, MultiPlan, and Humana Insurance Plans. That means nothing out of pocket for you!
PRINCIPLES OF ORAL WOUND HEALING
Post-procedure stretches are key to getting an optimum result. The mouth tends to heal so quickly that the tissue can constrict causing a new limitation and/or the persistence or return of symptoms.
Wounds tend to contract towards their center as healing occurs. Also, if you have two raw wound surfaces in the mouth in close proximity, they can reattach. It is therefore important to keep them stretched open.
ACTIVE WOUND MANAGEMENT â STRETCHING EXERCISES
It is important to remember to stay relaxed, smiling, and positive. You should show your baby or child that not everything is going to be painful. Be playful. The exercises are not meant to be forceful or prolonged.
Stretching exercises with quick and precise movements are best. A small amount of spotting or bleeding is common while doing the exercises, especially in the first few days. You may use infant Tylenol, childrenâs ibuprofen (only if older than 6 months), or Arnica to help with the pain.
A few drops of Hylandâs Teething Gel can be used during the stretching exercises to lubricate and help relieve some discomfort. Starting a few days after the procedure, the wound(s) will look gooey white and/or yellow in appearance. This is a completely normal inflammatory response.
UPPER LIP STRETCHES
This is the easier of the 2 sites to stretch, and if you are doing both lip and tongue, start with the lip. Place your finger under the lip and move it up as high as it will go until you feel resistance. Then gently sweep from side to side for several seconds. Remember, the goal is to open the opposing surfaces of the lip and gum so they cannot stick together.
UNDER THE TONGUE STRETCHES
Insert both index fingers into the mouth and dive under the tongue and pick up the posterior part of the tongue and lift towards the roof of the babyâs mouth. The tongue needs three separate stretching motions:
- Once you are under the tongue, pick up the posterior part of the tongue as high as it will go towards the palate. Hold it there for 3 seconds, relax, and do it again. The goal is to completely unfold the diamond so that you can visualize the entire diamond. The fold of the diamond across the middle is the first place it will reattach.
- Place your finger in the middle of the diamond and do a gentle circular stretch for several seconds to dilate or open up the diamond.
- Turn your finger sideways and do a rolling pin motion to try and keep the diamond as deep as possible. Start at the fold âcenterâ of the diamond and move to either side of the diamond top and bottom to loosen up the muscles of the tongue and floor of the mouth.
**Here is the best website you will find for comprehensive instructions for post operative exercises from Dr. Ghaheri.
Here is a nationwide provider list.